Monday, June 29, 2009

Many faces of Grant....

I love this little boy soooo much!!! He is doing great! His two brain bleeds have completely resolved on their own! We are still waiting to get the echo on his heart done but we know he will be okay no matter what! He is so STRONG!! After I got done feeding him today he was being so cute and kept on smiling when I would talk or sing to him! I still can't believe how much he looks like his brother Jimmy...they both look so much like Mike, it's just not fair!

Thursday, June 25, 2009

back in the incubator!!

Well Grants crib stay was short lived! He was only able to regulate his temp for 12 hours after they took him out of the incubator! So back in the box he goes! They just think he doesn't have enough body fat to regulate it on his own. He had dialation on his right kidney a couple weeks ago and they did a follow up test today and it looked great! They also did a brain ultrasound to check on his brain bleeds and we get the results later on today...we hope they are gone! They have to do another echo on his heart, I guess they heard another murmer so they have to make sure nothing major is wrong. He has come such a long way and we are so proud! He weighs 4lb 7oz and looks alot like Jimmy! We hope our stay in the NICU isn't too much longer...we want and need him home! I will update soon with more pics! Love to all!!

Friday, June 19, 2009

6 weeks in the NICU!!!

WOW!! it has been 6 long weeks in the NICU! Grant is doing so wonderful...finally!!! They moved him from his isolate today and into a BIG BOY crib!! He is able to be in a crib now because he was able to regulate his own temperature for 2 whole days!! He has also accomplished feeding from a bottle...this is a HUGE step for him! He is now getting 35cc and is able to eat most of it all by himself, sometimes he is too worn out and they give the rest through his feeding tube. We are so happy that he is doing so well and know that he is that much closer to coming home! We think it will be another 3 weeks before he is strong enough to come home but we cant wait and couldn't be more proud of the progress he's made! He is so strong and we love him so so much! The nurses and doctors have all been amazing and we are so thankful to them all!!

Mike got to feed him for the first time today! He is such a proud can just see it in his eyes when he looks at him... he did such a great job at feeding him, he was calm as can be and Grant loved it! I LOVE THEM!

Wednesday, June 10, 2009

Trip to Pima and Update on Grant

We have been busy little bees lately!! Mike had a couple of days off work so we were able to go up to Pima for a couple of nights earlier this week. We had such a great time! Kingston was able to play outside pretty much non-stop for 2 days with his cousins. I think he had the most fun with his uncle Hunter!! Hunter has about 5 horses, 30 rabbits, and 10 chickens in a coop! It's like a mini farm and Kingston absolutely loves it! He even has his own horse that Hunter let him name, Kingston some how came up with the name 9.8?? Don't kids say the funniest things sometimes!!?

Kingston with his baby horse 9.8...

Feeding the chickens all by himself!

Kingston is riding 9.8's mommy, she is so good with all the kids!!

Jimmy playing with the rabbits was so hilarious!! He didn't understand why these 'stuffed animals' moved! He would pick them up and they would jump out of his hands! It entertained him and us for quite some time!

Golfing in the backyard is always fun! They try to see who can drive it the furthest...Mike always wins of course! They are being silly posing for the camera!

I of course can't do a post without talking about my little angel Grant! He is starting to do better again. The poor little guy hasn't been able to eat for about 10 days now! He has been on antibiotics for the NEC in his intestines and while he has the infection he isn't able to eat! They were able to do a small surgery on him 2 nights ago to put a central line in...its pretty much an IV that is close to the heart...with this they are able to stop poking him for IVs every day and able to give his meds and up the calories through his TPN. He surprisingly weighs 4lbs 6oz now, which is crazy cause he hasn't been eating! The TPN nutrition is obviously working! However they are a little concerned because he seems to be holding on to a little extra fluid from his blood transfusion...just something we will be keeping an eye on! As far as breathing goes he is doing great!! Just on oxygen but otherwise completely breathing on his own! We can't wait to have him home and we love him so so so so so much! Thanks for all the prayers, he has already gone through so much and we know he wouldn't have gotten through it without the man upstairs! Love to all!!
The end!

Wednesday, June 3, 2009

Another update on Grant...

We got a call this morning around 6 am from Grant's NICU Doctor...I hate when they call you cause you know its not good news. Grant started having blood in his poop which is a sign of infection. They did an x ray and sure enough he has an infection on his intestines, this is horrible news...however it always seems that Grant gets the better of the problems if you understand what I mean, such as with his brain bleed he has a stage 1, not a stage 4, heart murmur went away with meds, not surgery...... so we are hoping it will be the same for his intestines. They are treating him with antibiotics for 10 days and while he is on them he cant eat so he will probably lose some weight...but we hope that the meds will do the trick! The last thing we want is for him to get surgery on his intestines, its very dangerous and life threatening. Good news is he is off of the cpap and breathing on his own through a nasal prong!! He will be a month old in 5 days, it has been the hardest month of my life. I just want to be able to hold him and take care of him like a normal baby. We are trying to stay positive but just cant help but to feel upset about the situation and want a normal life for Grant and our boys... This to shall pass I suppose! We will press forward and do the best we can, we know Grant is!!!!!
We slept with his bear so it would smell like home... they let him cuddle it!!